Ovde ćete pronaći najnovije vesti kako o radu udruženja pacijenata PH Srbija, tako i o najnovijim dešavanjima u oblasti lečenja plućne hipertenzije u Srbiji i svetu.
Study on burden of treatment
PHA Europe has helped perform a study about the burden of treatment recently published in BMC Medicine. Support a great PH awareness event on August 17!
"Paris-Brest-Paris" is one the most famous long-distance randonnée events in the world. This event, held every four years, brings thousands of riders from all over the world. Care-for-Science Award 2015
We would like to inform you of the application deadline for the Care-for-Rare Science Award 2015! May 5 – World Pulmonary Hypertension Day
Celebrations for the 4th World Pulmonary Hypertension Day (WPHD) have taken place or are taking place in the next few days all over the world to raise awareness of pulmonary hypertension. Sir John VANE Annual Symposium on Prostacyclin Science and Pulmonary Vascular Disease
The Tenth John Vane Memorial Symposium on Prostacyclin Science and Pulmonary Vascular Disease was held in London on March 6 and 7. This annual event is held in memory of Sir John Vane, who shared the Nobel Prize in medicine with Salvator Moncada in 1982 for his work on prostaglandins. Together with colleagues at Wellcome Sir John Vane also discovered prostacyclin, a vasodilator prostaglandin that helps prevent blood clots by reducing the stickiness of platelets, which was to be used in later years in the treatment of pulmonary arterial hypertension. International Rare Disease Day 2015 Policy event and “Black Pearl” Gala Dinner
International Rare Disease Day (RDD) is celebrated every year on the last day of February. This event was launched in 2008 by EURORDIS, the European Rare Disease Organization and has since gained increasing consensus, with thousands of RDD events organized in collaboration with patient associations worldwide every year. PHA Europe newsletter – March 2015
New pulmonary hypertension patient associations in Europe - Activities of the PHA Europe member associations - Successful advocacy in Europe - MEP Interest Group on Access to Healthcare - International Rare Disease Day - Sir John Vane Annual Conference on prostacyclins - Recent PHA Europe publications PHA Europe Newsletter – October 2014
The European PH community meets in Barcelona for its 11th General Annual Meeting (GAM). PH Patient Leaders from 27 countries attended this year’s edition of the GAM. PHA Europe Newsletter – September 2014
New developments in treatments and treatment strategies for pulmonary hypertension The two largest congresses in the fields of cardiology and respiratory medicine have taken place recently and it was very encouraging to see that a number of sessions were dedicated to pulmonary arterial hypertension and to chronic thrombo-embolic pulmonary hypertension (CTEPH), featuring some of world’s […] PHA Europe Newsletter – August 2014
Great success for the the 3rd edition of World PulmonaryHypertension Day (May 5th)! This year, 20 European countries joined forces to “Get Breathless for PH”! World PH Day activities also took place in 12 Latin American countries, Australia, Canada, China, Ghana, Indonesia, Oman, South Africa, and the U.S. – meaning a total of 40 countries […] PHA Europe Newsletter – May 2014
World Pulmonary Hypertension Day 2014 – May 5 Events to celebrate WORLD PH DAY in support of patients and their families are being held all over the world by national patient associations in Europe, North America, Latin America, Asia, Africa, Australia and New Zealand. Read all about WPHD at: http://www.worldphday.org/ In Europe alone pulmonary hypertension […] Riociguat has been approved form the EMA.
http://www.epresspack.net/bayer-riociguat/bayers-adempas-riociguat-approved-for-the-treatment-of-two-life-threatening-forms-of-pulmonary-hypertension-in-the-eu/ http://www.epresspack.net/bayer-riociguat/bayer-to-evaluate-riociguat-in-new-indication/ WORLD PULMONARY HYPERTENSION DAY – May 5
Events to celebrate WORLD PH DAY in support of patients and their families are being organised all over the world by national patient associations in Europe, North America, Latin America, Asia, Africa, Australia and New Zealand. Read all about WPHD at http://www.worldphday.org/ In Europe alone pulmonary hypertension (PH) patient associations from 22 countries are organizing […] News from the ERS: Educational course on Pulmonary Hypertension and Pulmonary Vascular Disease
Educational course on Pulmonary Hypertension and Pulmonary Vascular Disease, from 5-7 June 2014 in Lausanne, Switzerland International CTEPH Conference 2014
Download schedule. Medical News
U.S. FDA Approves Bayer’s Adempas® (riociguat) and Actelion gets positive CHMP opinion on Opsumit (Macitentan) PHA Europe Newsletter – October 2013
PHA Europe at ESC Annual Congress, August 31-September 4, Amsterdam PHA Europe was present at the 2013 Congress of the EUROPEAN SOC IETY OF CARDIOLOGY (ESC) with a booth and two representatives: Vice President Pisana Ferrari and Marzia Predieri from the Italian PH Patient association AIPI. The ESC Congress had almost 30,000 registered delegates from all […] Mariposa Journal Summer 2013 with World PH Day & Ironman
Welcome to this special edition of the Summer 2013 Mariposa Journal, which reports on the inspirational activities from the “Get Breathless for Pulmonary Hypertension (PH)” campaign and IRONMAN Europe, to mark the second World Pulmonary Hypertension Day (WPHD). Austria Kicks-Off WPHD in Style As football has by far the biggest following of any sport […] PHA Europe newsletter – May 2013
PHA Europe in Nice for the WSPH The World Symposia on Pulmonary Hypertension (WSPH) started in Geneva in 1973 and have been held every 5 years after the Evian edition in 1998. The symposia have marked the main progresses in pulmonary hypertension science and paved the way for further advancements. PHA Europe was present at […]